introduction
Hi! I’m Robin.
I’ve dealt with being transabled for as long as I can remember. Usually it stays in the background, making me aware it’s around all the time, but not actively interfering with my life. But once in awhile, for days-to-weeks, it’ll move to the foreground and the feelings of wanting MS will distract me from everything else in my life for a period of time (this is a “transabled attack”), then go back to being more or less in the background. This time it’s been many months and isn’t getting better, which does seem to be the pattern with other transabled people (as time goes on, the feelings seem to get worse, as opposed to better). I do what I can to keep going despite it. I pretend.
The latter had me very, very ashamed for a long time. At this point though, through talking to other transabled people I’ve just come to accept it as something I need to do, as it’s one of the only things that really helps when I’m in the midst of a transabled attack. On worse days, I do still feel some guilt for misleading others around me. Most days though, I just accept it as part of my life. I’ve been a full-time forearm crutch user for awhile now, and at some point in the near future I’ll likely become a wheelchair user. Not full-time, but will likely use a combination of wheelchair some days and crutches others. Of course, that’s what I said when I started using forearm crutches too, ‘Just once in awhile.’ Then I started using them, and found how much they helped. Haven’t gone a day without since.
That seems like a good enough introduction for now. I’ll likely write here fairly often over the next while, as it’s the first time I’ve had an outlet for this in awhile. I can’t promise it’ll be interesting, but it will at least be often ;)
[for more information, the ‘paq’ link at the top has answers to some questions]



Good to see that you’ve found an outlet!
oh the irony. i was in your exact place up until a short time ago. i was diagnosed with ms recently. not fun and oddly enough it has not changed my feelings.