paq (preemptively answered questions)

Given that this site isn’t even open to be viewed by anyone at the time I’m writing this, I can’t really call this an FAQ. For now, I’ll answer the questions that I anticipate people asking.

You’re joking…right? Why would anyone want a disease?
Nope, not joking in any way. I wish I was joking most days, as this certainly isn’t something that’s easy to deal with, and I don’t have any clear answers on why I feel like this, but I do.

Most other transabled people want a specific disability, like being para. Why MS? That doesn’t seem to fit in.
To be honest, I’ve no idea. It’s not any one specific disability aspect as it seems to often be with people, it’s an overall thing with me. There are many specific things that relate to that basic want, but it’s not focused on one specific one like wanting to be a wheelchair user, as it tends to be with a lot of people.

You should be happy to be able-bodied. Wanting something like MS doesn’t make sense.
That’s not a question. ;) Regardless, if I could be happy being able-bodied, I would be. Nobody would want to go through what I go through every day, but it’s not a choice, it’s just a part of me.

You keep saying you have to deal with this. You should just get into therapy, and get this sorted out. Then you wouldn’t have to deal with this anymore.
If only it were that simple! I’ve done therapy for a long time now, and continue to do so. Most people with BIID don’t find therapy to be useful in changing their feelings, but pretty much anything is worth a try, and it can’t hurt. At best, I’d imagine it may help me deal with being like this, as opposed to fixing it so I’m satisfied with being AB.

You keep talking about this not being about any one specific disability, so why all the wheelchair-related content?
I’ve set up this site/blog in the midst of one of the worst and longest transabled attacks I’ve ever had, and during this time period I’m starting to use a wheelchair part-time. I’ve been doing a lot of research around this, so the links/content as I set up the site tend to lean that way. It’ll get more neutral as the site matures, I’m sure.

No matter what you do, there’s no way you could ever understand what it’s like to have MS.
I won’t debate this at all. There isn’t any way I could ever know what it’s like, whatever I do. As it is, I do what I can to understand, knowing that I never really will very well.

All you ever talk about here is this one issue. Don’t you have a life outside of this?
Yep, but I can talk about the other aspects of my life in normal venues. This aspect isn’t generally understood/accepted, so I’ve seperated it from the rest of my life. This site was created specifically to give me an outlet to talk about this stuff, so that’s what I tend to stick to here.

Why ‘demyelinate’?
I needed a name for the site that had something to do with the content of it, but was short and memorable. As multiple sclerosis is a demyelinating disease, it seemed appropriate.